Willgoss, Tom, Daiana Cassater, Siobhan Connor, Michelle Krishnan, Meghan Miller, Carla Dias-Barbosa, Dawn Phillips, et al. (2021) 2021. “Measuring What Matters to Individuals With Angelman Syndrome and Their Families: Development of a Patient-Centered Disease Concept Model.”. Child Psychiatry and Human Development 52 (4): 654-68. doi:10.1007/s10578-020-01051-z.